Yes i agree-you HAVE to make nuisance of yourself. Something else that i have found effective is to write a letter to your Rheumatologist and tell him exactly how you are feeling. I too am sick and tired of being told I'm doing well, when it hurts.

The last thing we need is a fall to aggravate our joints too. Poor you.

Hi Barbara

You poor thing, you didn t need to fall on top of everything else, hope the pain is easing since you posted and taking lots of pain killers to help you.

You certainly do need to make a fuss at the next appointment, let them know you are very upset and at the end of your tether, unless you really spell it out to them they just don t understand what a terrible a time you are having at the moment. I feel sometimes they just see us as another patient and just can not appreciate how much we can suffer with such a painful and debilitating condition.

Take care, Julia x

hi Barbara,

sorry to hear you're having a rough time.

i've had 4 Depo injections in total, 2 worked well and 2 didn't so understand what you mean.

i hope you get all the help needed with your appointment in September, it's just not good enough when you are left to suffer.

Suzanne x

Hi everyone, well, things are the same, my hip is actually worse, and having read a post from Ellie saying she has trochanteric bursa, I think I may have that too. Like she says, they never tell you anything so how do you know what they're thinking?????
I cant remember having slept for more than an hour or two at a time for around3 months. I had a depo jab which did nothing at all, and I rested as my appointments are always on Fridays.
I am going to have to learn to be more assertive!! I have to get something sorted. Its been over two years now, and I'm still on the same meds!! Even though I say I have alot of pain and swelling.
I even dread going to bed as after half an hour or so the pain starts, it burns and shoot down my leg to my knee, no matter how slowly and carefully I move the pain is agonising. I don't think the doctor and nurse realise how bad it is.
Wish me luck!!! Take care ev everyone x x x

Thanks Jenni, all I can do is try to ask, whether they listen is something else unfortunately!
Have posted on RA only section, feel very sore and fed up, dont know what to do next

Thank you Lyn, have just replied to your post on the other thread.
Thats a brilliant idea to write it all down!! Although I have done this before with the consultant, he always turns away, and begins writing, and I find this disconcerting, and somehow makes me feel his isnt listening. At every appointment we go through the same routine, which meds I take, and the doses. He does a quick examination and then says that he thinks everything is going well. I say, I am in pain, and he doesnt reply. When I ask why I am still on the same drugs he says that everything seems well controlled, and that any pain is from the fibro and not the RA
As is the nurse I'm seeing I'll have another go. Wish me luck x